Nothing makes me a more committed proponent of the Social Model of Disability than modern lighting.
I am far more disabled, as an autistic person, than I once was. I’m far less tolerant of sensory triggers than I once was. Noise and bright lights are the things that get me more than anything, and more than they ever used to.
And yes, some of this is down to tiredness, lack of downtime or time and space to myself, and the fact that I have a lot more going on in my life than I did in my childhood, teens and 20s. But the truth is, I’m also better able to cope with a shit-tonne more stuff these days than I was able to in my childhood, teens and 20s. I’ve learned strategies. Approaches. Methods. I exercise. I eat healthily (most of the time). I do activities that nourish and fulfil…
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Lol, certainly made me smile…
Merry Christmas Everyone! Or for anyone that doesn’t celebrate Christmas, Happy Belated Hanukah, late Solstice, early Kwanza, and a Very Happy December 25th!
I think no matter what you celebrate, The 12 Days of Christmas carol is probably something that you’ve heard. The math has been done, and to purchase all 12 days of gifts would cost you almost $35,000!
I’ve replace the drummers, pipers, lords and ladies, the maids, the swans, and the geese, the gold rings, the calling birds, French hens, turtle doves, and the partridge with things that are a little more relatable!
So I present to you-
The Twelve Days of Autism
On the First day of Christmas, Autism gave to me, A meltdown in a pear tree
On the Second day of Christmas, Autism gave to me, two info-dumps, and a meltdown in a pear tree
On the Third day of Christmas, Autism gave to…
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I have a thing about dolls. I still have many of the dolls from my sixties childhood. They are hidden away. I’ve kind of felt ashamed about my doll love affair. It’s childish. I thought people would think me childish. Yes I am childish in many ways, after all, being child-like is an autistic trait. But. The new, no, …the real me… is gradually appearing and taking over and conquering the fears of the person I thought I was.
So, I’m coming out. And, my dolls should come out of the closet too.
I need to find a glass fronted antique style cabinet to display them. This is important as our home has two fires and sooty dust is a fact of life.
A year ago, before my shoulder became fully frozen I was completing a lot of jigsaw puzzles and this was one of them…
This jigsaw helped me re-identify with my authentic doll loving self. As a child my mum encouraged me to play with my dolls. I didn’t know how. But i did love to look at them. I liked collecting them. (During my teenage years I found all my dolls under the house and in the refuse bin. They were rescued and hidden away!)
Wind forward a year later too late November 2017 when I bought this book…
And inside I found the pattern for this doll that I completed last week…
I made her with my handspun yarn and she’s stuffed with fleece, yarn ends and a bit of poly fill.
My dolls are still in the closet. It’s time to get them out.
This morning I’ve been preparing labels and a hand written sign explaining who I am.
There’s a small boutique in Dunster where I buy some of my clothes. It’s a lovely store for me to shop in as it’s quiet and well lit with natural daylight. Jen, the manager, often has out of hours special shopping evenings and on Friday she is hosting such an event with the addition of a few local crafts people. Jen invited me to participate! She understands about my sensory processing difficulties and is willing to display my wares even though I cannot be there. I will set my price and I think she will add a bit too that to cover her time. It’s only fair and I’m completely happy with that.
So I have eight woven items that are going to be displayed on the rungs of the shop’s wooden ladder. Sounds perfect doesn’t it? 😃
You can find out more about Raft here .
These are the lovelies that are heading to Raft of Dunster…
I shall update with another post later in the week. Bye for now and thanks for visiting me here in the cottage xxxx
Thanks to Emma for writing this attached blog post. I mostly shutdown or implode.
Meltdowns are a huge part of life as an autistic person. They are often misunderstood, misinterpreted and cited as reasons that autistic people need curing or are childish. In reality, with the right understanding, meltdowns can be understood, remedied and even prevented. All you need is a comprehensive idea of what’s happening, and I think it’s safe to say I’ve got that. To achieve this knowledge, you need to look at a few things: what a meltdown actually is, the causes and triggers to aid future prevention, what can happen during a meltdown and finally, how to cope in the moment.
What a meltdown actually is (and what it isn’t)
I want to say meltdown is a response that autistic people have to a particularly distressing or overwhelming situations, but it feels like a huge oversimplification. During research for this post, I came across a definition that made so much…
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I wondered about the actually autistic tag as I had not come across it until I started this blog on WordPress earlier this month. Then I had an email from An Autism Observer and I queried this with her. Thank you An Autism Observer for adding yarn and pencil to Actually Autistic Blog List and for sending me the link to Alyssa’s blogpost.
I’ve copied and pasted the entire post but do go and see the original post that can be found here.
Citation: Hillary, Alyssa. “Why actually autistic tag” Yes, That Too. 2 Sept 2014; http://yesthattoo.blogspot.com Accessed 28 Aug 2017
“I got a couple hits from someone searching “why actually autistic tag.” I’m not entirely sure why I got those hits, because there are lots of Tumblr posts that answer the question directly and I haven’t done so here yet. I’m not sure if I did on Tumblr either. But, if people are going to be finding my blog by asking that, I suppose it’s relevant enough for me to try to answer. So. Once upon a time, stuff about autism was generally in the “autism” tag. It didn’t work very well, because much as the autism tag is currently filled with people posting pictures of their siblings and children (often without mentioning that the person is OK with this, which is a problem for a lot of reasons) tagged with autism for no apparent reason, people using an autism tag as an insult for people they don’t like, advertisements for Autism Speaks walks, and people talking about their autistic children and siblings as mysterious. All this is generally very tiresome for autistic people to read and dig through just to find a couple posts by actual autistic people about their own lives. Additionally, when we said things about how the assumption of “mysteriousness” or such othering descriptions were really not cool, if it was tagged “autism,” there would be a pile of angry parents and siblings. Basically, the “autism” tag was really unwelcoming for actual autistic people! It was all other people talking about their autistic relatives, generally in ways that squick autistic people. This is similar to the problems when autistic people tried to organize at conferences about autism run by non-autistic people. They really didn’t like it when autistic people started talking to disagree with them. So another tag started: “actually autistic” or “actuallyautistic.” Both versions of the tag get used, a lot of people use them pretty much interchangeably, a lot of people use one or the other, a lot of people use both on any given relevant post. I don’t know of any pattern relating to who uses which ones, but that doesn’t mean there isn’t one. That tag is meant as “the person posting this is themself autistic.” Not everything on that tag is immediately and obviously autism related, but it’s usually something that the poster thinks is related to their own autism. Sometimes it might be something that an autistic poster wants other autistic people to see, which is a pretty reasonable use of tags. Organization-wise, Autism Women’s Network (AWN) and The Autistic Self Advocacy Network (ASAN) both post there, and Parenting Autistic Children With Love and Acceptance (PACLA) sometimes will if the mod who’s making the post is themself autistic (which might be all the tumblr mods?) Autistics Speaking Day and Autism Positivity flash blogs both post to the tags as well- these are autistic-run flash blogs. Having run the tumblrs for both on occasion, I only tag the autistic-written posts as actuallyautistic, generally. But since I’m autistic and autistic people sharing links to relevant things, autistic-written or not, has been a thing in the tag before, I don’t worry too much about the ones where I’m not actually sure if the writer is autistic or not. Anyways: The short version is that the autism tag was and is an unsafe place for many autistic people because folks didn’t get that autistic people were following and reading and might be capable of having opinions on what we were reading, the actuallyautistic/ actually autistic tags are safer for some autistic people, and thus they exist.”